AAN Scientific Abstracts (click to see)
The American Academy of Neurology Annual Meeting! For fifty years, the largest international meeting of neurologists on the planet. The place to go to hobnob with colleagues, try out new toys, and hear about cutting edge research in every facet of neurology. The 2010 meeting took place in Toronto this year.
There are two ways to present research at the meeting. One, the more prestigious, is in the form of a fifteen-minute talk. Competition for this is fierce. The other is a poster. Imagine an entire room filled with dividers, each divider with a big poster on each side, every one presenting scientific data. Whoever wrote the poster is expected to “stand guard” over it, answering questions from passers-by.
A poster session is generally a win-win for everyone involved. The bar to entry is low, so it’s a chance to present preliminary analyses almost a year before they appear in journals. Frequently, smart people will say things like, “why don’t you analyze the data this way rather than that way,” and by gum, they’ll be right, and it won’t be too late to do it. For young investigators, it’s a chance to get face-time with bigwigs who walk by and ask questions; for bigwigs, it’s a chance to keep and eye on who’s clearly up-and-coming, and also get the inside scoop on scientific publications that will be shortly coming down the pike. Emergency room doctors may like surprises; neurologists on the whole do not. I much prefer poster sessions to talks myself.
So let’s see what this year’s AAN meeting had to offer for cluster headache researchers, shall we?
FIFTEEN-MINUTE TALKS
Anatomical Location of Deep Brain Stimulation Electrodes in Chronic Cluster Headache (Denys Fontaine, Michel Lanteri-Minet, Yves Lazorthes, Gilles Geraud, Nelly Fabre, Patrick Mertens, Malou Navez, Serge Blond, Christian Lucas, Francois Dubois, Lemlih Ouchchane, Jean-Jacques Lemaire)
Well, this looks promising! The short answer is–the posterior hypothalamus on the same side as cluster headache attacks, and we kind of knew that already ever since Dr. Arne May first scanned a patient having a cluster attack almost fifteen years ago, but it’s nice to have confirmation. Dr. Fontaine does suggest that in treatment failures the electrode is nevertheless in the right place, so there has to be something else going on other than surgical ineptitude.
What else?
Prevalence and Epidemiologic Profile for Adolescent Chronic Migraine (CM): Results of a U.S. National Survey of Chronic Daily Headache (Richard Lipton, Aubrey Manack, Judith Ricci, Elsbeth Chee, Catherine Turkel, Paul Winner)
Migraine and White Matter Hyperintensity Volume: The EVA MRI Cohort (Tobias Kurth, Shajahal Mohamed, Pauline Maillard, Bernard Mazoyer, Carole Dufouil, Christophe Tzourio)
Hypothalamic Volume Decrease in Hypnic Headache (Dagny Holle, Steffen Naegel, Sarah Krebs, Charly Gaul, EIke Gizewski, Zaza Katsarava, Mark Obermann)
Cortical Spreading Depression Activates Trigeminovascular Neurons in Lamina I of the Spinal Trigeminal Nucleus (XiChun Zhang, Dan Levy, Rami Burstein)
Frequent Headaches in the Preadolescent Pediatric Population—A Population-Based Study (Marco Arruda, Vincenzo Guidetti, Federica Galli, Regina Albuquerque, Marcelo Bigal)
Voxel-Wise Assessment of White and Gray Matter Damage in Patients with Migraine and Different Disease Phenotypes; A Combined TBSS and VBM Study (Martina Absinta, Maria Rocca, Bruno Colombo, Andrea Falini, Giancarlo Comi, Massimo Filippi)
Depression: A Risk Factor for Migraine Chronification: Results from the American Migraine Prevalence and Prevention (AMPP) Study (SaitAshina, Dawn Buse, Aubrey Manack, Daniel Serrano, Morris Maizels, Catherine Turkel, Pilchard Lipton)
The Plasmatic Vascular Endothelial Growth Factor Level Is Decreased in Migraine Patients (Maria Toriello, Agustin Oterino, Jesus Castillo, Ana ALonso-Arranz, Montserrat Gago, Julio Pascual)
Headache as a Risk Factor for Neurovascular Events in Pediatric Brain Tumor Patients Sarah Kranick, Cynthia Campen, Scott Kasner, Sudha Kessler, Rebecca Ichord, Daniel Licht, Sabrina Smith, Lauren Beslow, Michael Fisher
Cross-Sectional Survey of Neurologic Dysfunction and Headaches in North American Patients with Behcet’s Disease Ilya Kister, Maria Filopoulos, Monalyn De Los Reyes Labitigan, Sara Crystal, Matthew Robbins, Joseph Herbert, Yusuf Yazici
OnabotulinumtoxinA for Treatment of Chronic Migraine: 56-Week Analysis of the PREEMPT Chronic Migraine Subgroup with Baseline Acute Headache Medication Overuse Stephen Silberstein, Joel Saper, Michael Stein, Ronald DeGryse, Catherine Turkel
Headaches (HA) in Children and Adolescents (C/A) with NeurofibromatosisType1(NF-I) D. Elefant, A. Rothner
Oh well, it looks as if that was it for talks on cluster headache. Now let’s turn to the posters:
POSTERS
P04.001 Reversible Hypohidrosis with Topiramate Therapy for Chronic Migraine (Shira Markowitz, Matthew Flobbins, ClairCascella, Huma Sheikh, Brian Grosberg)
P01.002 Headache and Neurological Deficits with Gerebrospinal Fluid Lymphocytosis (HaNDL): Could It Be an Autoimmune Disease? GulsenAkman-Demir, Erdem Tmun, Dilaver Kaya, Burcak Vural, ElifUgurel, Sema Icoz, Mefkure Eraksoy, Angela Vincent, Mustafa Ertas, Murat Kiirtuncu
P04.003 Application of the Kano Methodology for Evaluating Migraine Treatment Expectations Among Neurologists in Spain. The MIGREXX Study Jorge Matias-Guiu, Gonzalo Nocea, Teresa Caloto
P01.004 High Migraine Frequency May Be Associated with Increased Interictal Platelet Activation in Episodic Migraine Jill Jesurum, CindyFuller, Sylvia Lucas, Natalia Murinova, Lisa Hales, Elisa McGee
P04.005 Response of SUNCT (Short-Lasting Unilateral Neuralgiform Headaches with Conjunctival Injection and Tearing), SUNA (Short-Lasting Unilateral Neuralgiform Headaches with Autonomic Symptoms) and Primary Stabbing Headaches to Occipital Nerve Stimulation (ONS) Juana Mann, Peter Goadsby
PM.606 Lifetime Anxiety Symptoms in Migrainous Vertigo Gulden Akdal, Birgul Bald, Aysegiil Ozer, ElifOnur
P04.007 Evaluation of Efficacy and Safety of MAP0004 in Reversing Central Sensitization and Treating Migraine in Established Allodynic Patients Stewart
Tapper, Shashidhar Kori, Scott Borland, Min Wang, Bin Hu, Stephen Silberstein
P04.008 The Timing of Gastric Stasis in an Acute Migraine and Its Impact on Treatment Shashidhar Kori, Sheena Aurora
P01.009 Occipital Neuralgia as an Isolated Symptom of Bone Metastasis Caused by Hepatocellular Carcinoma Myung-GooJi, NamHeeKim
P04.010 Posttraumatic and Postsurgical Nummular Headache Brian Grosberg, Jelena Pavlovic, Matthew Robbins, Un Napchan, Seymour Solomon, Richard Lipton
P04.011 Clinical Phenotypes and Morphological Changes of the Circle of Willis in Migraineurs Ken tkeda, Himnoto, Konosuke Iwamoto, Kiyoko Murata, Yuji Kawase, Osamu Kano, Kiyokazu Kawabe, Hiroaki Iguchi, Yasuo Iwasaki
P04.012 Syncopal Migraine: Migraine as a Cause of Syncope David Curfman, Michael Chilungu, Robert Daroff, Amer Alshekhlee, Gisela Chelimsky, Thomas Chelimsky
P04.013 Putative Clinical, Mechanical and Local Paracrine Mechanisms of Pituitary Adenoma-Attributed Headache Christoph Schankin, Markus Krumbholz, Anna Kristin Reifferscheid, Jennifer Linn, Walter Rachinger, Petra Sostak, Thomas Arzberger, Andreas Straube
P01.014 Spinal Subdural Collection in the Setting of a Spontaneous Cerebrospinal Fluid Leak I/era Fridman
P04.015 The Headache Under-Response to Treatment (HURT) Index: An Instrument Developed by the “Lifting the Burden” Campaign To Improve Management of Headache, Especially in Primary Care Dawn Buse, Timothy Steiner, Daniel Serrano, Michael Reed, Richard Lipton
P04.016 Scleral Buckle as a Unique Cause of Facial Pain Babak Movassaghi, David Watson
P04.017 Determinants of Migraine-Related Disability Richard Lipton, Andrew Blumenfeld, Jack Ishak, Sepideh Vamn, Ariane Kawata, Aubrey Manack, Dawn Buse, Peter Goadsby
P04.018 Magnetic Resonance Perfusion Imaging in Hemiplegic Migraine Sirinan Tazen, C. Haynes Fialsten, Margaret Jaynes, David Watson
P04.019 Migrainous Vertigo Presenting in the Perimenopause Jan Brandes, Susan Roberson, MarkBennett, David Haynes Behavioral Neurology: Language and Praxis
P06.246 Cutaneous Allodynia as a Prognostic Factor in the Treatment of Migraine with Botulinum Toxin Paul Mathew, FredCutrer, Ivan Garza
P06.247 Does Gender Affect Efficacy and Tolerability of SumaRT/Nap During the Early Intervention Treatment of Migraine? ShellyLener, Jill Palchinsky, Nathalie Richard, April Thompson
P06.248 Headache Prophylaxis Using Combination TherapyÑA Statistical Modeling Study Bibhutibhushan Mishra, Leah Gaedeke, Richard Amdur, Bernhard Samuel
P06.249 Experience with Botulinum Toxin Type A in the Treatment of Medically Intractable Pediatric Chronic Daily Headache Kamran Ahmed, Kimberly Oas, Kenneth Mack, Ivan Garza
P06.Z50 OnabotulinumtoxinA for Treatment of Chronic Migraine: Analysis of the 56-Week PREEMPT 1 Trial Sheena Aurora, Ninan Mathew, Stephen Forner, Dennis Riff, Xiaofang Lei, Catherine Turkel
P06.251 OnabotulinumtoxinA for Treatment of Chronic Migraine: Analysis of the 56-Week PREEMPT 2 Trial David Dodick, Marek Gawel, RetoAgosti, Tamara Ann Miller, Xiaofang Lei, Catherine Turkel
P06.25Z Intracranial Hypotension Mimicking Focal Spinal Amyotrophy Enrico Ferrante, Dante Facchetti, InesArpino, Alberto Cittern, Roberta Stem
P06.253 OnabotulinumtoxinA for Chronic Migraine: PREEMPT Trials Establish a Safe and Effective Dose and Injection Paradigm Andrew Blumenfeld, Stephen Silberstein, David Dodick, Sheena Aurora, Catherine Turkel, William Binder
P06.254 Antialgic Effect of Low Intensity Laser in the Treatment of Cervicogenic Headaches Jose Special!, Renata Pizzo, Fabiola Dach, Rosane Lizarelli
P06.255 Acute Medication Use Patterns in Episodic Migraine: Results of the American Migraine Prevalence and Prevention Study (AMPP) Richard Lipton, Dawn Buse, Daniel Serrano, Wendy Golden, Ya-Ting Chen, Marcelo Bigat
P06.256 Spreading Depression: The Effects ofAntiepileptic Drugs Used in Migraine Prophylaxis Joan Baptista De Mows
P06.257 Is Telcagepant Effectivein Migraineurs Who Previously Used Opioids? AndrewHo, James Kost, Carl Dahlof, Stephen Silberstein, Samar Froman, Heather Leibensperger, Christopher Lines, Tony Ho
P06.258 Fungal Sinusitis: A Surgically Treatable Cause of Chronic Daily Headache Pedro Kowacs, Renato lachinski, Gustavo Nogueira, Ana Amelia Torres
P06.259 Efficacy of Enalapril in Migraine Prophylaxis: Does It Work Through Endothelial Dysfunction Recovery? Seyed Ali Sonbolestan, Kiyan Heshmat, Shaghayegh Javanmard, Muhammad Saadatnia
P06.260 Intravenous Valproate Sodium Aborts Migraine Headaches Rapidly Kadi Shahien, Abdalla Bowirrat, SaadAbu Saleh
P06.261 Acute Anti-Migraine Efficacy and Tolerability of Zeirix’”, a Novel lontophoretic Transdermal Patch of Sumatriptan Mark Pierce, Angel Angelov
P0B.262 Bilateral Masseter and Temporalis Hypertrophy: Case Report and Review of Literature Pinky Agarwal, Marilyn Bormmeo-Wesner, Alida Griffith
P06.263 Pulse IV Steroid and IV Valproate Combination Therapy for Sustained Relief of Chronic, Treatment Refractory Headaches in Patients with Psychiatric Disorders Hasan Askari, Muhammad Zaidi
P06.264 Regression of Chronic Migraine and High Frequency Episodic Migraine to Low Frequency Migraine through Surgery Deborah Reed, Bahman Guyumn P06.265 Spontaneous Retinal Venous Pulsations as a Window to CSF PressuresÑAre They Reliable? Paul McMonagle
P06.266 A Case of Multiple Cranial Neuropathies from Perineura] Spread of a Non-Melanoma Skin Cancer Ryan Walsh, David Capobianco
P06.267 Serial Polysomnography in Hypnic Headache Shows No Association with REM Sleep Mark Obermann, Dagny Holle, Thomas Wessendorf, Sebastian Zaremba, CharlyGaul, Hans-Christoph Diener, Zaza Katsarava
P06.268 Reversible Cerebral Vasoconstriction (RCVS) in Children and Adolescents (C/A): Its Role in Thunderclap Headaches Shalaka Indulkar, Catalina Cleves, S. Pinar Karakas, SumitParikh, A. David Hothner
P0S.269 Osmophobia Is Increased in Menstrually Associated Migraine Christine Matarese, F. Michael Cutrer
P06.270 Cardiac Autonomic Dysfunctions in Migraine Attack Dong-jin Shin, Sung-Hyouk Kim, Wook-Jin Chung, Seung-Won Seol
P06.271 A Tale of Two Systems: Cardiac Cephalalgia vs. Neurologic Cardiodynia PaulMathew, Christopher Boes, Ivan Garza
P06.Z72 Onset and Potential Initiating Factors in New Daily-Persistent Headache Matthew Robbins, Brian Grosberg, UriNapchan, Sara Crystal, Richard Lipton
P06.273 Relationship between Headache Frequency and Migraine-Related Disability in the International Burden of Migraine Study (IBMS) WilcoxTeresa, Andrew Blumenfeld, Sepideh Varon, Krista Payne, Aubrey Manack, Dawn Buse, Peter Goadsby, Richard Lipton
P06.Z74 The Effect of Serum Glucose Level on Cerebrovascular Reactivity to CO2 in Women with Migraine without Aura: Transcranial Doppler Study Using Breath Holding Method Jeong-Ho Park, Sun-Ah Park, Tae-Kyeong Lee, Ki-Bum Sung
P06.275 Impact of Nutritional Factors on the Prevalence of Headache or Migraine Catherine Buettner
P06.276 Rates and Predictors of Remission from Chronic Migraine (CM) to Episodic Migraine (EM); Results from the American Migraine Prevalence and Prevention (AMPP) Study Aubrey Manack, Dawn Buse, Daniel Serrano, Catherine Turkel, Richard Lipton
P06.277 Prevalence of Chronic Daily Headaches as a Function of Parental Headache StatusÑResults from the Attention Brazil Project” Marco Arruda, Vincenzo Guidetti, Federica Galli, Regina Albuquerque, Marcelo Bigal
P06.278 PTSD, Drug Abuse, and Migraine: New Findings from the National Comorbidity Survey Replication (NCS-R) B. Peterlin, Andrea Flosso, Fred Sheftell, David Libon, Jana Mossey, Kathleen Merikangas
P06.279 Cutaneous Allodynia–A Predictor of Migraine Chronification: A Longitudinal Population-Based Study Sail Ashing, Dawn Buse, Marcelo Bigal, Daniel Serrano, Michael Reed, Richard Lipton
P06.280 Results from an International Observational Study of Pregnancy Outcomes Following Exposure to Sumatriptan, Naratriptan, or the Fixed Dose Tablet Sumatriptan and Naproxen Sodium (SumaRT/Nap) Frederick Derosier, Marianne Cunnington
P06.Z81 Natural History of Post-Traumatic Headache: Prevalence, Impact, and Clinical Characteristics Sylvia Lucas, Jeanne Huffman, Sureyya Dikmen, Kathleen Bell
P06.282 An Analysis of Practice Guidelines on Headache Published by American Academy of Neurology Arun Antony, Najib Murr
P06.283 New Daily Persistent Headaches (NDPH)ÑFollow Up and Outcome in Children and Adolescents (C/A) Sahithya Wintrich, David Hothner
P06.284 Body Mass Index (BMI) and Migraine in the Korean Population Min Kyung Chu, Kyung Mi Oh, Byung-Gun Kirn, Jae-Myun Chung, Kwang Sou Lee, Richard Lipton
P06.285 Temporomandibular Disorders, Headache Status and Headache Frequency: A Population-Based Study Jose Special!, Daniela Goncalves, Cinara Camparis, Marcelo Bigal
P06.286 Sex Hormone Receptor Gene Polymorphisms and Migraine: A Systematic Review and Meta-Analysis Markus Schuerks, Pamela Rist, Tobias Kurth
P06.287 Relationship between Migraine Status and Functional Outcome from Stroke Pamela Rist, Julie Buring, Tobias Kurth
P06.288 Acute Treatment of Migraine in Patients with Cardiovascular Disease or Risk Factors Wendy Golden, Marcelo Bigal, Junhua Yu, Henry Hu, Diana Brixner, Richard Lipton, Joanne LaFleur
P06.289 5-HTTLPR Polymorphism in the Serotonin Transporter Gene and Migraine; A Systematic Review and Meta- Analysis Markus Schuerks, Pamela Rist, Tobias Kurth
P06.290 Caffeine Intake in Adolescents Upon First Visit to Headache Specialty Center Chad Whyte, A. Rothner
P06.291 Association between Socioeconomic Status and Migraine with and without Aura Anke Winter, Julie Buring, Tobias Kurth
P06.292 Field Testing Chronic Migraine Criteria in the Population: Results of the German Headache Consortium (GHC) Study Zaza Katsarava, Aubrey Manack, Min-Suk Yoon, Mark Obermann, Dagny Holle, Peter Dommes, Catherine Turkel, Richard Lipton, Hans-Christoph Diener
P06.293 Triptan Use as a Function of Cardiovascular Risk. A Population-Based Study Marcelo Bigal, Wendy Golden, Dawn Buse, Ya-Ting Chen, Richard Lipton
P06.294 Prenatal Tabagism and Alcohol Intake Are Associated with Chronic Daily Headache at Childhood. A Population-Based Study Marco Arruda, Vincenzo Guidetti, Federica Gall’i, Regina Albuquerque, Marcelo Bigal
SC02.006 Functional MRI Suggests Iron Deposition in Pain Regulatory Nuclei in Episodic Migraine and Chronic Daily Headache Stewart Tepper, Kechung Liu, Stephen Jones, Micheal Phillips, Mark Stillman, Mary Horvat, Mark Lowe
IN3-2.007 HeadacheinResidents and Workers Exposed to World Trade Center (WTC) Dust, Gas, and Fumes Presenting for Medical Care Sara Crystal, Joan Reibman, Mengling Liu, Kristen Babinski, Alexandra Milin, Katherine Henry
P05.270 Reversible Arterial Vasoconstriction in Sturge Weber Syndrome Presenting with Postcoital Headache and Transient Hemiplegia MatthewGrantz,Elaine Skalabrin, Michael Wilder, L. DeWitt, Benjamin Lewis, Jennifer Majersik, Juliann Allred, Amer Malik, Pegah Afra
P04.249 Orthostatic and Non- Orthostatic Headache in Postural Tachycardia Syndrome (POTS) Ramesh Khurana, Lindsay Eisenberg
P03.011 Bartonella Cat Scratch Disease Presenting as Neuroretinitis and Headache without Lymphadenopathy JoannaGan,Alan Mandell, James Otis, Michael Perloff
P04.190 Headache in Multiple Sclerosis. Clinical and Therapeutical Correlations ChiaraMonaldini,Jay Guido Capone, Maria Luisa Caniatti, Ilaria Casetta, Susanna Guttmann, Enrico Granieri, Maria Rosaria Tola
P01.195 One-Year Prospective Study on Headache Occurrence in Multiple Sclerosis (MS) Patients Treated with Natalizumab Dacia Dalla Libera, Bruno Colombo, Bucello Sebastiano, Pietro Annovazzi, De Feo Donatella, Martinelli Vittorio, Giancarlo Comi
And that’s the news from the world of headache! There is a poster on SUNCT (Short-Lasting Unilateral Neuralgiform Headaches with Conjunctival Injection and Tearing), which is a rare form of cluster headache that lasts only a couple of minutes. It is so rare, that fewer than a hundred cases have ever been reported. The incidence is estimated at one in a hundred thousand, which makes it 1/400th as common as cluster headache. But SUNCT gets a poster, and cluster headache does not.
So what exciting new cluster headache treatments will be appearing in the near future? None. What should we expect to see coming out in the world of cluster headache research over the next year? Nothing. Needless to say, I didn’t go to the AAN meeting this year, and this is why.
My question to my readers is–why aren’t you out picketing? Cluster headache is four times as common as muscular dystrophy, I kid you not. Cluster headache is as common as multiple sclerosis. Yet Jerry’s kids are out there raising $60 million a year for muscular dystrophy research. $100 million a year is poured into MS research. The comparable figure for cluster headache research is… well, close to zero.
But if you don’t care about cluster headache research, why should we?
The European Headache Alliance [EHA] launched its Madrid Manifesto on Headache/Migraine Disorders on Monday, May 24th in the Spanish Parliament, Madrid.The Manifesto is a call to governments and health policy makers across Europe to recognise that the failure of healthcare systems to provide effective treatments to migraine sufferers is causing an unnecessary socio-economic burden.
“Migraine needs to be put firmly on the political agenda,” says Audrey Craven, EHA President, “We would ask you to sign the manifesto below. The more signatures we receive the more powerful our lobby will be when we approach policy makers.”
More: http://www.petitiononline.com/headache/petition.html
If you like you can add a comment about cluster headache with your signature.
My synopsis of the reasons we aren’t “out there” picketing with one caveat: We soon will be!
Collective voices.
The average cluster headache sufferer isn’t correctly diagnosed in many cases for years. During these years the seeds of “why” are firmly planted (probably wedged sideways in the cerebrum causing secondary pain to our primary pain).
Collective voices.
We are told “no” you do not have a brain tumor after; scheduling the primary care physician’s appointment, seeing primary care physician, scheduling appointment with neurologist after waiting weeks to get a referral to neurologist, seeing neurologist, scheduling MRI, CAT scan or lumbar puncture, having said procedure weeks later AND during this period trying to manage the pain of cluster headache itself.
Collective Voices.
When the “no” you do not have a brain tumor is finally said, we are exhausted, our families are relieved, our bosses expect our now declared “able” bodies back to a full 40 hour work week and then the whispering begins.
Most likely a period of 6 months has passed.
If you’re episodic, maybe your cycle has ended. If it has, you think, hope, pray this was a one time event. You put the horror of the medical system experience, the pain of the acute, recurring nightly attacks and the whispers in the “DO NOT TOUCH” files of your memory.
Collective Voices.
If your chronic, the whispers are changing into impatience, outright direct accusations of making “all this up”, “just get over it, you can not be in that much pain” coupled with the fact that the pain IS so great that you have returned to the neurologist, filled your triptan, prednisone and verapamil prescriptions and living now only to take your next dose, hoping that “surely, this one, this tiny little pill, will end all this madness so I can have my life back”.
And so you recede.
You do not know another living soul with this condition.
Collective Voices.
You get fired, you get divorced, you run out of insurance and you continue to have 5-10 attacks every single night.
You have no hope AND whats worse, you have very few (if any) symptoms (that others can see) to support that you have a neurological disorder not a headache. It’s called a “headache”…..”go lie down and get over it!”
I didn’t have a “rally” because from the beginning I’ve been slammed. Slammed with pain. Slammed with fear (brain tumor). Slammed with more fear (it’s night time). And still more fear (should I commit suicide).
Oh yes and now, of course, the most promising of medications that are being studied are classified as schedule 1 drugs with the DEA (whispers).
Collective Voices are assembling. It’s only a whisper at the moment, but it’s “our” whisper. Not the whispering of others about us!!
Cindy Reynolds
Episodic from 1977 through 2008
Chronic from 2008 to present
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this is a letter from belgium. my husband has the neuralgy of horton (cluster headaches) as well. actually right now he’s in the middle of a new period of attacks, about every 2 or 3 hours, day and night. he’s very very tired, and afraid to go to sleep, cause every time he wakes up another attack starts. nexto this, he has a very bad stomach (surgery as a baby) and he has fybromalgy (muscle and bone pains). Sometimes I wonder how he manages to keep alive. Allthough, like this morning, he said he had enough and wants to end his life, but of course, between attacks, he will not say such a thing. He’s a trucker, and I’m scared that he is going to be so tired, that he will have an accident, which could involves innocent by standers. He cannot take any medecine because of his stomach, and on the other hand, he does not want to take medicines, because on many forums people tell it gets twice as bad, afterwards. Anyone who wants to give advice or wants to just talk about this, can mail us on 777webmaster@annickvanblaere.be
for all of you who have this neuralgy, my heart is with you, cause I know what you are going through.
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I actually enjoy that guide for this issue,thanks for the tips!
Wise are those who learn how the important thing doesn’t have always to be their main priority.
toner…
[...]Cluster Attack – Bringing Cluster Headache Researchers and Patients Together[...]…
It’s good to see someone else who thinks like I do. With so much ignorance in the world these days it’s nice to know there’s someone out there who isn’t an idiot.
Dear Dr. Sewell,
It’s been one year and seven months since I first read your challenge to all cluster headache patients for us to get active & advance the interest in treatments for our condition.
I took it very seriously. Your words felt accusingly painful at first but then I realized you were right! We did need to get organized, speak, ask and convey our message to an audience who could invest in the fundamentals such as education and research.
The Alliance for Headache Disorder Advocacy provided the vehicle for myself and many other cluster headache patients to be heard on March 27th, 2012 on Capital Hill. The event, known as, “Headache on the Hill”
http://www.allianceforheadacheadvocacy.org/who_is.htm
Led by Dr. Robert Shapiro, the event was a collaborative effort of 67 neurologists, migraine patients, cluster headache patients, attorneys and other professionals.
Thanks for challenging me to get active!!!!
To view photos follow the link below.
Sincerely,
Cindy Reynolds
https://picasaweb.google.com/116224999681657343555/HeadacheOnTheHill2012?authuser=0&authkey=Gv1sRgCJ6t0M6lw9WZGw&feat=directlink
I’m glad to hear it! We shall see what happens.