Comments on: Which Side is Your Headache?

By: Cindy Reynolds

Cindy Reynolds — Tue, 24 May 2011 15:54:47 +0000

15 year old female with left sided episodic attacks every 18-24 months until age 39. 9 year remission. May of 08, right sided autonomic symptoms appeared (w/o attacks) lasting several months and then the attacks began and continue to this day rendering me chronic.

By: Anonymous

Anonymous — Sat, 28 Nov 2009 04:07:51 +0000

Anonymous to protect my medical records.

I have had Cluster-Migraines, 1 double sided CH attack, a cycle that switched sides during the cycle and during attacks.

I would never mention these to a doctor because any symptom that isn’t classic CH is treated as Migraines not Clusters and I would receive meds that wouldn’t work.

My first Neurologist decided that I had Migraines and would give me Imitrex injections or Oxygen. Since I have stopped mentioning any non classic Cluster symptoms I have received proper treatment and lots of pain free time. I am now in a situation of not being able to find a Neurologist to treat me because of my other aliments.

I am sure may other sufferers have learned what I have so symptoms out of the normal go unreported.

By: asewell

asewell — Wed, 21 Oct 2009 14:52:31 +0000

Not at all! Even more interesting are those patients who have autonomic symptoms but no pain. I had one who used to wake up at the same time each night with a runny nose and didn’t put it together with his former cluster attacks until I asked him about it.

By: Darrell

Darrell — Mon, 12 Oct 2009 20:54:41 +0000

This is the first time I have seen mention of an absence of autonomic symptoms. I am mildly surprised to see that I am joined by 4% of cluster sufferers, all the while thinking I was a complete freak with no company.

By: gizmo

gizmo — Thu, 01 Oct 2009 06:10:11 +0000

Regarding double-sided attacks:
I personally experienced them and there are some reports on clusterheadaches.com regarding double-sided attacks as well.